I AM THE DJ (Series – 4)
November 15, 2014

For some strange reason Cole is more willing to try new music when he’s alone with me as opposed to when he’s in the car with both my husband and I. Lucky for me, I’ve had a few lone weekends recently where it was the just the two of us driving around town, rocking out. When he’s in the mood for fun, we car dance and we both gleefully sing loudly which most certainly would be unpleasant should anyone hear us! This weekend I think I’ll try to oldies like Jerry Lee Lewis! Maybe he’ll like seat bopping to that era…These are a few songs we tried last weekend…

On our recent playlist:

1. Prince – Let’s Go Crazy (LOVES)
2. Prince – I Would Die 4 U
3. Hall & Oates – You Make My Dreams Come True (thank you to The Voice!)
4. George Ezra – Did You Hear The Rain?
5. Lloyd Cole & The Commotions – Perfect Skin
6. Lloyd Cole & The Commotions – Are You Ready To Be Heartbroken
7. Camera Obscura – Lloyd, I’m Ready To Be Heartbroken (how can you not?)
8. Foster the People – Helena Beat
9. Hozier – Take Me To Church
10. Weezer – Aint’ Got Nobody (already loves Weezer)

MARK ME ABSENT
November 14, 2014

To say this school year has been bumpy would be an understatement.

Our school is a wonderfully unique place. It’s a public charter school. The charter is inclusion. The student body strives to mirror the real world average ratio of typical students, gifted students (about 20%) and I.E.P. (Individual Education Plan) students (also about 20%). The I.E.P. students are those who have learning disabilities, behavioral disabilities or physical disabilities.

The children are all taught together in the same classroom(s) and there are no pullout services (i.e. kids who receive speech or physical therapy being removed from class to do so – therapies are integrated into the class). The classes are co-taught by a general education teacher who is supported by a special education teacher. Modifications are made to school and homework that challenge, or better access different students. Moreover, the children in our community are exposed to all different kinds of kids and quickly learn that despite sometimes obvious differences, they’re all more alike than not. Compassion and acceptance abound.

That said, it’s not an easy task to walk into a class with twenty something new students (yes, we have small class sizes too!) with various issues and have everything magically fall into place. It takes a lot of skill, patience, insight and dedication. It also requires adequate support of the special education teacher, collaboration with the families, as well as with the paraprofessionals who support the kids with needs. Successful school years are those where everyone is working together, communicating and supporting each other, as well as supporting the student.

Cole’s had great school years. He’s had ones that started bumpy before, like his fourth grade school year. He started school in full leg casts and a giant wheelchair that couldn’t fit near a desk or near his communication device due to a summer hip replacement surgery. He was miserable and disheartened that he couldn’t access things as he was accustomed to. On top of that, he had a brand new teacher. A teacher who did not yet have experience with kids like Cole and who at first seemed terrified. A month in, the casts came off. Cole returned to his usual chair and happily participated in class again. His teacher gained confidence, learned to access some of the more difficult kids, and quickly became one of the best teachers at the school. Definitely one of Cole’s favorites, and mine. Fourth grade ended up being a terrific year.

This year however has been slow to pick up. All of his teachers (in 7th grade you have six classes) are new to both our school, and a couple to teaching. There’s a great learning curve for all of them in general, coupled with the challenge of middle school kids.

Sadly none of seems to be working well and for the first time since he started pre-school, Cole routinely doesn’t want to go to school. This is a kid who formerly would tell you that he’d like to live at school. He used to be happy to get ready each morning, and was reluctant to go home at the end of the day. Now he wants nothing to do with it. We have a team meeting coming up where I hope we can make some strides toward improving things. One of the new teachers resigned last week, and a new permanent replacement will start after Thanksgiving. Perhaps fresh eyes on things will help with everything. This school is unlike anywhere else and I can’t imagine Cole thriving in a different environment. I have faith that things can improve.

JUST A GIRL
November 13, 2014

I just finished reading Caitlin Moran’s novel How To Build A Girl, which I loved! Johanna, her lead protagonist felt so familiar to me despite being of a slightly different generation and locale. The novel chronicled Johanna’s creation of her alter ego, Dolly Wilde, teenage music critic, who exploded on the scene in a grand way, allowing Johanna to experience her first kiss, drink, smoke, concert, and many other firsts. Dolly brought out the best and worst of Johanna, but all informing the young woman she will eventually become.

Teenage girls often find themselves categorized and shelved depending upon their appearance, smarts, interests, athleticism, and finally, their willingness to experiment with boys, drink and drugs. Subcategories exist within the groupings but overall, there are the usual sterotypes, the popular girls, the nice girls, the drill team, the drama girls, the girls who play.

As I’ve aged, the sad thing I’ve come to realize is that it’s not just others (parents, teachers, adults, boys) who determine the status of girls, it’s other girls. We allow ourselves to be defined by outside influences rather than us defining ourselves, and others accepting our designations. For better or worse, more often than not, it’s the pressures other girls put on us that become pivotal reflections of who we are and who we become.

Like Johanna, I felt the pressures of being kind of middle of the pack. I was kind of cute, not model thin, smart enough, nice enough, and above all, super insecure as a teenager. I never saw myself as the chosen girl or the girl who gets chosen. I learned that kissing boys opened doors, many that I wish I hadn’t walked through, but that did ultimately help shape the adult I became.

I learned that pursuing some of my interests, like punk rock music, both gave me refuge and cast me as a bit of an outcast at the same time. I wasn’t extreme enough in any one pursuit. I learned that a couple of drinks (yes, I admit to underage drinking) eased the discomfort at parties and made me an uninhibited dancer at clubs. I often found myself in the role of wing girl, which gave me great insight into the games we play. All of this informed the woman I became.

I’m still not the prettiest, smartest, nicest, most interesting of all of the people I know but I am comfortably me. A “me” I accept and generally approve of. I’m kind, compassionate, curious, caring and loving. I’m a good mother, wife, employee, and friend. I strive to be the best me I can be without sacrificing the things that make me special. The scars, visible and not, that I carry from my evolution are there and I wouldn’t be me without them. I treasure the experiences that created me.

PEOPLE ARE STRANGE
November 12, 2014

There exists a contingent of people who are uncomfortable with others who are different and who are unable look past the differences or past their discomfort to be welcoming or kind. It always surprises me but I can accept that not everyone is going to embrace Cole, or take the time to get to know and understand him. I understand that it comes with the territory of being his mom. I’m not looking to change the world by using him as a lesson to others, especially not if it means putting him in the face of someone who has expressed unease about being around him.

Not everyone understands this desire to protect him from something that is somewhat unspoken. There are people I’m close to who seem to think it’s arbitrary but I know if they were ever to become aware that someone pointedly expressed discomfort at being around their own child or partner, they would likely feel the same way. It’s not the sort of thing one easily overlooks or ignores. It’s hurtful, both the ignorance of the people who have difficulty being around a child with disabilities and the lack of understanding or support from the others.

It rattles my soul that someone would pass judgment on a child, any child. It saddens me that anyone who cares about us would encourage us to put him in a position where he’s not entirely welcome.

Thankfully, it’s not something that comes up often. We are fortunate to have built a community of friends who embrace our little family. Cole has great friends who love him just as he is and he them. Over the years he’s managed to amass a great many fans. He’s endeared himself to the staff and patrons of many of our regular shopping haunts and eateries, and often finds new friends as we wander aisles. When he’s feeling especially outgoing, it’s hard not to want to stop and say Hello to him. To a large degree he is blessed to be a part of an extended community that welcomes him with open arms. For that I am thankful.

EVERYDAY IS LIKE SUNDAY
November 9, 2014

I’ve mentioned the chronic lack of sleep…Last night was no exception. Cole went to bed early because he’d been up since 3:45 am the night before which somehow translated to him waking at 2:15 am! Meaning I was up then too. Strangely when he wakes in the middle of the night, he’s not distressed like I am. He’s usually cheery and snuggly. He likes to spoon a little and chats a lot.

While I am happy to do the snuggling, it makes me sleepier, wanting to nod off. The chatting makes me grouchy. It interrupts the dozy feeling and removes me from the place where I can actually go back to sleep. Which is what he wants. He doesn’t actually want to be awake alone. He wants a cohort.

This morning I finally got him to go back to sleep for a little while around 6am…By that point I was awake so I just quietly read next to him enjoying the little snoring and especially the warmth of being next to him. More snuggles when did wake up and then a little morning TV in bed which has become one of his favorite weekend morning respites. He loves to watch a little quiet TV while snuggled up in the warm bed with the cat and dog snuggled up next to him. They all love it.

Sunday mornings are perfect for this, especially in cooler weather, and I love that Cole has finally grown to appreciate a good lazy Sunday morning. (He used to be antsy and need to get going from the second he woke up.)

During the week I long for these lazy Sunday mornings. Weekday mornings are a flurry of feeding, showering, dressing and rushing to get everyone ready and out of the house for school and work. There’s little time for distraction. We have a long weekend coming up with the Thanksgiving holiday and I’m looking forward to treating every day of that weekend like Sunday.

EVERY DAY I WRITE THE BOOKS
November 8, 2014

Reading and writing are both passions of mine. I grew up in a house where there were lots of books and voracious readers. My dad devoured books. He kept handwritten lists of the books he read each year which eventually were maintained electronically. I have one of the old handwritten notebooks with his lists from the late ‘60’s, but don’t know what became of the later lists. He would read several books a week.

He instilled a love of reading in me from an early age. When my brother and I were still young enough to be wearing Sears Winnie the Pooh footed PJ’s he read The Hobbit to us over the span of a couple of weeks, delighting us with voices and invoking our imaginations to see the magical world.

My mom shared her Salinger books with me and I loved knowing that the books I read were first read by her. Franny & Zoe became a beloved treasure. I still have her old editions, as well as my dad’s worn paperback of 100 Years of Solitude, which I’ve read each decade of my life. His copy now resides next to a hand inscribed edition that Gabriel Marquez Garcia gifted me. Both are precious.

My husband and I have tried to instill a love of reading in Cole. While he has enjoyed being read to all of his life, I’m not sure how passionate he feels about reading. We’ve not been able to quantify his reading ability. We know he is capable of reading and we observe him recognizing words. I sometimes try to read the wrong things in our nightly reading and he does correct me. But just how well he reads is uncertain. I’d love him to have reading as an escape, though I think part of his enjoyment from reading comes from the shared experience of us reading with him. I hope that his passion will grow as he matures.

I dream of one day writing a novel. I have several that I’ve started, and left hanging. I’ve thus far not been able to complete the journey. My dad also started writing several books. The skeletons are stored somewhere. Sometime after he died I thought I’d like to try to finish writing one of his books but I think our voices are different and I would disservice his intention. Better to focus on my own endeavors.

One step I’ve determined to be supportive of the dream is this blog. The discipline of writing something (almost) daily has proven to be good practice. I find the more I write, the more inspired I am to write, and the more confident I feel about my writing and my voice. My hope is that I can channel the inspiration and discipline into something special, even if it’s just special to me.

UNDONE (The Sweater Song)
November 7, 2014

When I was in high school, a boy I knew nicknamed me “Sweater”. I’m not one hundred percent sure why but I have always believed it was partially because I wore a lot of sweaters (even when the weather dictated otherwise), and because I attempted to carry off the punk rock version of a 1950’s Sweater Girl look. Pencil skirts, pegged jeans, and lots of vintage sweaters.

I loved the nickname and I loved sweaters. I still love sweaters and nothing makes me happier than the onset of sweater weather. Being a native of Southern California, a born and bred real live Valley Girl, sweaters are really all you need for warmth and comfort. Sure there’s the occasional need for rain gear, an umbrella, or cool night gear, add a scarf and perhaps gloves, but a sweater always works.

As a teen and young twenty something I scoured vintage and thrift stores seeking out angora and cashmere cardigans and pullovers as well as oversized loose knit mohair sweaters like Captain Sensible and Johnny Rotten wore so well. I once went as far as (accidentally) flying home from visiting a friend in San Francisco wearing a sweater I borrowed (the truth is I stole it) from a friend of her boyfriend’s – a multi-colored blue mohair beauty that I wore until it unraveled rather unceremoniously.

From my teens until now, my fifties (I can’t quite get used to thinking of myself as “in my fifties” being only a couple of months into them…), there exists one sweater that I try to update every couple of years. The perfect black turtleneck. My perfect one is actually a mock turtleneck. My love of this style of sweater started when I found one that belonged to my mom when I was in high school. It was slightly fitted, had three quarter length sleeves and landed just below my waist. I wore it with everything and it was always perfectly appropriate for anything, and with anything. I wore it until it too became too tattered and thread barren and had to be put to rest.

I’ve never found one just a perfect as that first sweater but it’s not stopped me from trying. These days my perfect one would have sleeves that are just a tad too long, and fall more at my hips. I still prefer a mock turtle to a full turtleneck because I’m quite full in the chest and having that bit of neck show above the collar seems more flattering. I still wear them with anything and everything.

For some strange reason, sweaters just make me happy. Maybe it’s a comfort thing?

DO YOU FEEL BAD ABOUT IT
November 6, 2014

We’ve had a really bumpy re-entry from ten days of two to a few days of three and now back to two again. My husband is traveling quite a bit this fall and while he’s always traveled for work, this particular round of trips has been long. The first was long enough for Cole and I to fall into a routine of our own, that felt rather interrupted when he returned for a few days between the next week long trip that has him on another plane heading to San Francisco.

There have been a lot of petty fights that seem to escalate into loud hurtful bouts, as well as some territory marking with regard to the old and new routines. I’ll be honest, I don’t think well when I’m angry which leaves me frustrated and angry. It’s a terrible combination. I can be very mean (a family trait I’m not proud of) and often say things I don’t intend to.

The sad thing is that in our small house, and our small family life, there’s no escape from Cole and he bears witness to much of the ugliness. I worry about how it affects him. He doesn’t have the experience of fighting to understand that often, no matter how heated it gets, once both sides breathe, it’s over. Wounds are licked and life moves on. He sees this, but I don’t know how much of the anger lingers in his mind. I know it must be unsettling for him but I don’t know how much he retains or holds on to.

We promise to make an effort to both be kinder to one another and to recognize that there is some inherent thrust in the transition back from long trips for all of us. We try to uphold the promise and do better each time but then we teeter and falter, because we’re human. But does Cole understand all of the nuances of our relationship as a couple? Does he now recognize the patterns of our arguments and the settling back to our life as three?

ROBERT ONION
November 5, 2014

More and more I realize all of the nuances about my son that I don’t know. While I feel like I know him well on the one hand, the fact of the matter is that I only know what I perceive I know. It sounds mysterious when presented as such but the truth is that so much of him is just that, a mystery.

Since he was little we accepted his smile as an affirmation of approval or delight, and then gone with those acceptances. We’ve assumed his preferences by this scale since he was tiny. He’s always been adamant with his dislikes and no’s. He learned to say the word NO early on. It’s a simple word that he became very consistent with, although frequently his choice of expressing displeasure or dislike is the glorious whine. It’s the most effective and garners the most immediate reaction because “no one likes a whiner”.

Though lately I’ve been wondering if our interpretations are often too general. Because he whines in a store, we generally leave. Because he whines at a song, we switch to a different song. But are we interpreting the whine correctly? I’d say half the time we are probably correct. We do know him fairly well but other times like when he’s antsy at an event or waiting around or in an unfamiliar setting, the factors that are causing his behavior are so vast, and our solution is to often remove him from it when perhaps it’s just that he’s cold, or next to something that smells bad, or needs a jacket, or wants to move closer to the cute dog or girl, or just wants us to pay attention to him for a minute. But how do you know?

The layers of his personality seem so untouchable. I feel like we only touch the surface of what he things, feels, and wants. We manage his immediate and primary needs. We try our hardest to understand the depths of his being but at the end of the day, he’s an enigma.

It’s a strange understanding to love someone and to be fully devoted to making his every moment rich and fulfilled and to know that you may not ever be entirely successful in doing so, no matter how hard you try. It makes me wonder how much of his acceptance of things, and his willingness to go along with choices we make on his behalf is him showing us the same love and devotion and his understanding that sometimes we just don’t get it. We don’t always get him.

I AM THE DJ (Series – 3)
November 4, 2014

I hum…a lot. It’s actually a bit of a problem. There is always a song running through my head, sometimes even when I’m listening to an entirely different song. I hum to myself when I work, play, sleep and am occasionally caught humming when I eat. I don’t even know I do it. Sometimes it escalates to quiet singing out loud, like when I’m grocery shopping or grooving around Target. Music just seems to run through me, always.

There are times I think I hear Cole hum too. It’s hard to know for sure but I sometimes hear what sounds like a tune coming from him. I asked him about songs getting stuck in his head recently. He says they do and that sometimes he can’t shake a song even when he’s supposed to be paying attention in class…

Here’s a sampling of the new music we tried recently:

1. Taylor Swift – Shake it Off (he loves)
2. Griswolds – Beware The Dog
3. The Pixies – Head On
4. Banks – Beggin for Thread
5. Postal Service – Such Great Heights
6. REM – Can’t Get There
7. Lorde – Yellow Flicker Beat
8. Mehgan Trainor – All About That Base
9. Hozier – From Eden
10. Manchester Orchestra – Every Stone