November 5, 2015

Cole’s doing an intensive two-month long, three days a week, bout of physical therapy. He’s getting up on his feet, standing and stepping using a Lite Gait treadmill system. So far he loves it. It’s hard work and already this week he’s doubled his walking distance. After four months of largely reclining on a bed or sitting in a comfy Chill Out Chair, it’s got to feel good to get his body moving again.


This is a boy who for years would repeatedly respond to almost any question with “I want to move my body” on whatever communication device he happened to be using at the time. He has always preferred to be on his feet, whether supported by equipment or human.

Until the surgery, he even liked to move when he was sitting, the “kicky dance” as we fondly call it. When he hears music he likes, or sees something funny or entertaining, he would kick his legs and feet whilst drawing his hands to his hips – think River Dance but seated. He started doing this when he was baby and continued up until the surgery. We are just now starting to see the tiniest bit of foot action, giving us hope that the kicky dance will return. It’s adorable, and the smile that most often accompanies it is beyond infectious.

I feel relief in the joy he seems to be taking from doing the physical therapy. While his endurance still needs some building (he’s exhausted at the end of the day, which makes evenings a bit trying for all), he’s finally starting to show signs of psychological recovery from the surgery. His body and mind did not heal at the same rate but it seems like the mind is starting to catch up finally.

The holiday season is a time of year Cole loves, giving me lots of hope that between all of the strength and walking training, and his love for all things holiday will have him completely back to his happy, strong, amazing self in the New Year! I’m also holding on to hope that we can stave off the constant listening to holiday music until after Thanksgiving…only 21 days…could happen…

April 20, 2015

(An obvious song choice but how I could I not?)

Finding time to exercise is a chore. I’m not inherently disposed to love exercise, although I really do enjoy being physical and moving my body. I just have to find the right mix of good workout, interest and perhaps passion. A friend I know loves yoga and dance, and looks forward to her classes as they bring her joy. Physical movement and challenging your body and mind kind of joy which to me is a great thing and I wish I could find the class(es) or activities that could bring this to my life, and that I can actually fit into my daily life.

I know a lot of people struggle with this. In the realm of life, we all know we need to exercise and that it’s something that we should prioritize in our daily lives in order to maintain good health and sanity. I know this. I know this. I know this.

But I can’t manage to do it.

I took What’s Your Fitness Personality, an online quiz I found that resulted in me being a “seeker”. My results suggested that I pursue running, walking, weight training and martial arts. Apparently I’m goal driven and self-motivated. I have both of these traits in life, but not when it comes to setting fitness goals and self-motivating my ass out the door to workout.

I’m not a runner, though I do imagine myself running from time to time. It’s a workout that I know I could fit into my weekday because I can do it in my neighborhood, before or after work, and it doesn’t require equipment or cost. I actually want to like running but again struggle with starting it.

Given that I’m (allegedly) goal driven, I found a couple of online routines that promise to take you from zero to running 30 continuous minutes in eight weeks, and a six week training program that takes you from zero to running a 5K. Both seem reasonable and both interest me. Running for 30 minutes straight seems like an achievable goal, as does training for a 5k. Reaching one or both goals would be empowering.

But no one tells you how to push yourself out the door on that first day…HELP!